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Sleepless in…Dayton (Part 1)

25 Jan

By the end of summer 2016, I had been to two different neurologists and on 4 different seizure medications. I still didn’t have answers. I didn’t even have an official diagnosis. The meds either didn’t work to control the seizures or the side effects were so bad (my body hates medicines) that I had to be taken off of them. I had also been to a homeopathic doctor and there was no help from the natural end of the world either.

So my doctor decided it was time to do the test I had been avoiding for 3 months: EEG monitoring. This is where you go into the hospital for 3-5 days (you don’t know how long you need to be there until they start monitoring and gathering data) and they do a continuous EEG on your brain. I had been dreading this test for a couple reasons: a) they take you off all seizure medication during it and I wasn’t looking forward to that. b) I was going to be missing my favorite week of camp back at work. c) what in the world was I supposed to do in the hospital for 3-5 days hooked up to all these machines??

My mom and sister both came up for the testing and bright and early on August 9th, my mom drove me to the hospital. We got checked in and they started hooking up all the wires to my head and chest and then they wrapped my head to prevent the wires from falling off. The nurse wrapped my head very tightly and she told me that it was because she didn’t want to have to redo it. I actually still have a mark on my forehead from where one of the electrodes was pressed into my head. During the testing you are on video, sound, and EEG record and a tech watches you 24/7. I had this brilliant idea that I was going to use this time to rest my poor body. It needed rest so badly so I planned on getting as much sleep as possible. Since we had had to wake up early to get to the hospital, once everything was hooked up, my IV was in place, and all the nurses left the room, I settled in to take a nap. I was just about asleep when the tech came in the room.

“Hey, honey. You know you can’t fall asleep, right?” Uh…nooooo. “They have you on sleep deprivation right now so we need to keep you awake for roughly 21 hours and then we’ll let you sleep for 4.”

Oh. That would have been nice to know the night before because I probably wouldn’t have stayed up late talking with my sister with this nice thought in my mind of sleeping at the hospital the next day. Suddenly I felt overwhelmingly tired and I was stuck sitting in bed… this was going to be a long day.

When my first meal arrived that day, I bowed my head to pray and said, “Lord, thank you for…” and I started to cry. It occurred to me how unthankful I had been for this opportunity. There are so many people in the world who don’t have access to medical care or the financial means to use it and I had be so ungrateful for my chance to do this testing. I had been caught up in how much I didn’t want to go and how unpleasant it was going to be that I had forgotten to thank God for giving me this chance to find answers.

 

(You are currently reading a post in a series called The2016Story. If you have jumped in in the middle and would like to start at the beginning, click HERE.)

 
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Posted by on January 25, 2017 in The2016Story

 

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